Young adults with severe physical disabilities : Negative public health care experiences after their health care transition in Finland
Heräjärvi, N. U., Leskinen, M. O., Pirttimaa, R. A., Virtanen, T. E., & Jokinen, K. J. (2023). Young adults with severe physical disabilities : Negative public health care experiences after their health care transition in Finland. Alter, 17(4), 5-29. http://journals.openedition.org/alterjdr/2641
Julkaistu sarjassa
AlterTekijät
Päivämäärä
2023Oppiaine
KasvatustiedeHyvinvoinnin tutkimuksen yhteisöErityispedagogiikkaEducationSchool of WellbeingSpecial EducationTekijänoikeudet
© Authors 2023
This study aimed to identify factors associated with negative public health care experiences of Finnish young adults with severe physical disabilities with or without a co-occurring intellectual disability after their transition from child to adult health care. Paediatric neurologists used clinical examination Gross Motor Function Classification System (Expanded & Revised) level IV or V to diagnose severe physical disabilities in all 74 subjects (M age 20.2). Thirty-nine of the participants (53%) had a co-occurring intellectual disability according to ICD-10 (IQ < 70). Paediatric neurologists developed the instrument Severely Disabled Youths’ Life Situation and the Functioning of the Service Systems in Finland to collect data. Fisher’s exact tests examined the association between experiences with health care factors and public health care. Binary logistic regressions predicted negative public health care experiences from negative experiences with needing new assistive devices, difficulty getting a physician’s appointment, and physician’s lack of disability knowledge. Multi-professional neurology clinics for young adults with severe physical disabilities and disability education for physicians could improve health care access.
...
Julkaisija
EHESS - École des hautes études en sciences socialesISSN Hae Julkaisufoorumista
1875-0672Asiasanat
Alkuperäislähde
http://journals.openedition.org/alterjdr/2641Julkaisu tutkimustietojärjestelmässä
https://converis.jyu.fi/converis/portal/detail/Publication/197303220
Metadata
Näytä kaikki kuvailutiedotKokoelmat
Lisenssi
Samankaltainen aineisto
Näytetään aineistoja, joilla on samankaltainen nimeke tai asiasanat.
-
Disparities in Accessing Sexual and Reproductive Health Services at the Intersection of Disability and Female Adolescence in Tanzania
Mesiäislehto, Virpi; Katsui, Hisayo; Sambaiga, Richard (MDPI, 2021)Despite at times having greater needs for sexual and reproductive health (SRH) services, adolescents with disabilities often face challenges when trying to access them. This inaccessibility is further exacerbated during ... -
Being independently dependent : Experiences at the intersection of disability and old age in Finland
Era, Salla; Kröger, Teppo (Routledge, 2024)This chapter discusses the situation of older persons with disabilities in Finland from the viewpoint of personal experiences, focusing on in/dependence. Older persons with disabilities tend to be overlooked in both ... -
Transitioning from adolescence to adulthood for young people living with cerebral palsy : a meta-ethnography
Boyle, Paul; Vuoskoski, Pirjo; Stew, Graham; Galvin, Kathleen T. (Routledge, 2022)Transitioning from adolescence to adulthood appears to be a challenging period for young people living with cerebral palsy. The aim of this review was to highlight the challenges that might be experienced during this period. ... -
The Development of Motivation and Amotivation to Study and Work across Age-Graded Transitions in Adolescence and Young Adulthood
Symonds, Jennifer; Schoon, Ingrid; Eccles, Jacquelynne; Salmela-Aro, Katariina (Springer New York LLC, 2019)People’s motivation to engage in studying and working is an important precursor of participation and attainment. However, little is known about how motivation and the lack of motivation develops normatively across adolescence ... -
Infants’ emotional and social experiences during and after the transition to early childhood education and care
Gath, Megan E.; Herold, Laura; Hunkin, Elise; McNair, Lynn J.; Redder, Bridgette; Rutanen Niina; White, E. Jayne (SAGE Publications, 2024)The socio-emotional experiences of infants during transitions to early childhood education and care (ECEC) and across their first year in these out-of-home contexts are not well known. In an international project across ...
Ellei toisin mainittu, julkisesti saatavilla olevia JYX-metatietoja (poislukien tiivistelmät) saa vapaasti uudelleenkäyttää CC0-lisenssillä.