‘I became more aware of my actions’ : A qualitative longitudinal study of a health psychological group intervention for patients with myalgic encephalomyelitis/chronic fatigue syndrome
Keurulainen, M., Holma, J., Wallenius, E., Pänkäläinen, M., Hintikka, J., & Partinen, M. (2023). ‘I became more aware of my actions’ : A qualitative longitudinal study of a health psychological group intervention for patients with myalgic encephalomyelitis/chronic fatigue syndrome. Health Expectations, Early View. https://doi.org/10.1111/hex.13833
Published inHealth Expectations
© 2023 The Authors. Health Expectations published by John Wiley & Sons Ltd.
Objectives To explore myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients' experiences of a health psychological group intervention and its usefulness, non-usefulness or harmfulness for illness management and adjustment. Design A qualitative longitudinal study using inductive content analysis. Methods Semistructured interviews were conducted with 10 adults. Interviews were conducted before the 16-week intervention, immediately after its completion, and at 3 months after completion. Results Participants reported that the intervention was useful and not harmful. The model improved their ability to cope with ME/CFS by providing them with useful information about the illness along with peer support and professional guidance. Participants reported improved illness management and adjustment, which they perceived as an outcome of achieving new ways of thinking, feeling and acting. Conclusions Participants viewed the health psychological approach to group intervention as meeting their needs. To achieve better illness management and adjustment, more consideration should be given to supportive interactional processes with peers and healthcare professionals. Patient or Public Contribution The intervention was developed to meet patients' needs of finding ways to manage their illness. The research team consulted eight patients with ME/CFS and three clinical centres working with ME/CFS treatment and rehabilitation at the intervention planning stage. Their comments influenced the planning and content of the intervention as well as ethical issues that should be considered, such as potential harm to participants. All participants were informed about the theoretical foundations of the study and the principles guiding the intervention. Participants were not involved in the data analysis. ...
Publication in research information system
MetadataShow full item record
Additional information about fundingState research funding, Grant/Award Number: 200230059; University of Jyväskylä, Department of Psychology
Showing items with similar title or keywords.
Patients’ conceptions of undergoing physiotherapy for persistent low back pain delivered in Finnish primary healthcare by physiotherapists who had participated in brief training in cognitive functional therapy Holopainen, Riikka; Vuoskoski, Pirjo; Piirainen, Arja; Karppinen, Jaro; O’Sullivan, Peter (Taylor & Francis, 2022)Purpose: To explore the conceptions of patients with persistent low back pain (LBP) of undergoing physiotherapy delivered in Finnish primary healthcare by physiotherapists who had participated in brief training in Cognitive ...
Cognitive behavioural therapy interventions for insomnia among shift workers : RCT in an occupational health setting Järnefelt, Heli; Härmä, Mikko; Sallinen, Mikael; Virkkala, Jussi; Paajanen, Teemu; Martimo, Kari-Pekka; Hublin, Christer (Springer, 2020)INTRODUCTION: The aim of the study was to compare the effectiveness of cognitive behavioural therapy interventions for insomnia (CBT-I) to that of a sleep hygiene intervention in a randomized controlled design among shift ...
Cognitive behavioural therapy and mindfulness for stress and burnout : a waiting list controlled pilot study comparing treatments for parents of children with chronic conditions Anclair, Malin; Lappalainen, Raimo; Muotka, Joona; Hiltunen, Arto J. (Wiley-Blackwell Publishing Ltd.; Nordic College of Caring Science, 2018)Background Parents of children with chronic conditions often experience a crisis with serious mental health problems for themselves as a consequence. The healthcare focus is on the children; however, the parents often ...
The effectiveness and applicability of different lifestyle interventions for enhancing wellbeing: the study design for a randomized controlled trial for persons with metabolic syndrome risk factors and psychological distress Lappalainen, Raimo; Sairanen, Essi; Järvelä, Elina; Rantala, Sanni; Korpela, Riitta; Puttonen, Sampsa; Kujala, Urho; Myllymäki, Tero; Peuhkuri, Katri; Mattila, Elina; Kaipainen, Kirsikka; Ahtinen, Aino; Karhunen, Leila; Pihlajamäki, Jussi; Järnefelt, Heli; Laitinen, Jaana; Kutinlahti, Eija; Saarelma, Osmo; Ermes, Miikka; Kolehmainen, Marjukka (BioMed Central Ltd., 2014)Background. Obesity and stress are among the most common lifestyle-related health problems. Most of the current disease prevention and management models are not satisfactorily cost-effective and hardly reach those who ...
Incorporating digital self-services into integrated mental health care : a physician’s perspective Taiminen, Heini; Saraniemi, Salla; Parkinson, Joy (Emerald Group, 2018)Purpose: This paper enhances current understanding of digital self-services (computerized Cognitive Behavioural Therapy (cCBT)) and how they could be better incorporated into integrated mental healthcare from the physician’s ...