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dc.contributor.authorSung, Ya-Li
dc.contributor.authorHuang, Huei-Ling
dc.contributor.authorLin, Chung-Chih
dc.contributor.authorKröger, Teppo
dc.contributor.authorHsu, Wen-Chuin
dc.contributor.authorHsu, Jung-Lung
dc.contributor.authorLin, Yueh-E.
dc.contributor.authorShyu, Yea-Ing L.
dc.date.accessioned2022-08-25T06:26:37Z
dc.date.available2022-08-25T06:26:37Z
dc.date.issued2022
dc.identifier.citationSung, Y.-L., Huang, H.-L., Lin, C.-C., Kröger, T., Hsu, W.-C., Hsu, J.-L., Lin, Yueh-E., & Shyu, Y.-I. L. (2022). Experiences of family caregivers of persons living with dementia with and without a smart-clothes assisted home nursing program during the heightened COVID-19 alert. <i>BMC Geriatrics</i>, <i>22</i>, Article 697. <a href="https://doi.org/10.1186/s12877-022-03379-8" target="_blank">https://doi.org/10.1186/s12877-022-03379-8</a>
dc.identifier.otherCONVID_151772806
dc.identifier.urihttps://jyx.jyu.fi/handle/123456789/82814
dc.description.abstractBackground The COVID-19 pandemic has required restrictions of daily activities, which has been found to impact the lives of persons living with dementia (PLWDs) and their family caregivers, who have multiple care demands. The lack of relevant studies in Taiwan emphasized the need to explore the experiences of family caregivers of older PLWDs faced with the intensified restrictions to control the spread of COVID-19, and the impact of the availability of a smart-clothes home nursing program. Methods This qualitative study used semi-structured interviews with family caregivers of older PLWDs. Participants were recruited from dementia clinics of a medical center in northern Taiwan from a subset of a sample from a larger study on smart-clothes assisted home nursing care. A total of 12 family caregivers who participated in the original study were interviewed during the follow-up period; seven family caregivers of a PLWD wearing a smart-vest, which transmitted information to a home care nurse; five caregivers of a PLWD not wearing a smart-vest. Interviews were conducted by telephone because the conditions of the pandemic prevented face-to-face interviews. Recorded interviews were transcribed and analyzed using content analysis. Results Interview data showed family caregivers’ felt the care recipient’s health was compromised and functional conditions intensified as Covid-19-related pandemic restrictions increased. Specific concerns included a lack social interactions, decreased daily activity levels, loss of interest and lack of motivation for activities, increased mood and behavioral problems, a decline in physical function and an increase in health problems. Family caregivers were also impacted by these restrictions, with significant increases in severity of caregiver role strain, including feeling trapped, a lack of in-home support, profound powerlessness, and worries about the PLWD contracting the coronavirus. The smart-clothes assisted home nursing care program offered supplementary support to family caregivers by providing on-time interactions, helping them manage health problems, enhancing predictability of the care recipient’s behaviors, and providing caregivers with emotional support. Conclusions The findings of this study support alternative care such as implementation of technology-assisted home health services to meet caregiver needs to facilitate family caregiving of PLWDs during the necessary restrictions in activities implemented during the COVID-19 pandemic. Trial registration ClinicalTrials.gov Protocol Record NCT05063045.en
dc.format.mimetypeapplication/pdf
dc.language.isoeng
dc.publisherBioMed Central
dc.relation.ispartofseriesBMC Geriatrics
dc.rightsCC BY 4.0
dc.subject.othersmart-clothes
dc.subject.otherhomecare nursing
dc.subject.otherfamily caregivers
dc.subject.otherdementia
dc.subject.otherCOVID-19 pandemic
dc.titleExperiences of family caregivers of persons living with dementia with and without a smart-clothes assisted home nursing program during the heightened COVID-19 alert
dc.typearticle
dc.identifier.urnURN:NBN:fi:jyu-202208254347
dc.contributor.laitosYhteiskuntatieteiden ja filosofian laitosfi
dc.contributor.laitosDepartment of Social Sciences and Philosophyen
dc.contributor.oppiaineYhteiskuntapolitiikkafi
dc.contributor.oppiaineIkääntymisen ja hoivan tutkimuksen huippuyksikköfi
dc.contributor.oppiaineHyvinvoinnin tutkimuksen yhteisöfi
dc.contributor.oppiaineSocial and Public Policyen
dc.contributor.oppiaineCentre of Excellence in Research on Ageing and Careen
dc.contributor.oppiaineSchool of Wellbeingen
dc.type.urihttp://purl.org/eprint/type/JournalArticle
dc.type.coarhttp://purl.org/coar/resource_type/c_2df8fbb1
dc.description.reviewstatuspeerReviewed
dc.relation.issn1471-2318
dc.relation.volume22
dc.type.versionpublishedVersion
dc.rights.copyright© The Author(s) 2022
dc.rights.accesslevelopenAccessfi
dc.relation.grantnumber336668
dc.subject.ysodementia
dc.subject.ysoomaishoitajat
dc.subject.ysoikääntyneet
dc.subject.ysoälyvaatteet
dc.subject.ysopandemiat
dc.subject.ysokotihoito
dc.subject.ysokokemukset
dc.subject.ysoCOVID-19
dc.subject.ysoomaishoito
dc.subject.ysokotisairaanhoito
dc.format.contentfulltext
jyx.subject.urihttp://www.yso.fi/onto/yso/p1711
jyx.subject.urihttp://www.yso.fi/onto/yso/p19104
jyx.subject.urihttp://www.yso.fi/onto/yso/p2433
jyx.subject.urihttp://www.yso.fi/onto/yso/p22555
jyx.subject.urihttp://www.yso.fi/onto/yso/p10121
jyx.subject.urihttp://www.yso.fi/onto/yso/p5513
jyx.subject.urihttp://www.yso.fi/onto/yso/p3209
jyx.subject.urihttp://www.yso.fi/onto/yso/p38829
jyx.subject.urihttp://www.yso.fi/onto/yso/p19584
jyx.subject.urihttp://www.yso.fi/onto/yso/p11868
dc.rights.urlhttps://creativecommons.org/licenses/by/4.0/
dc.relation.doi10.1186/s12877-022-03379-8
dc.relation.funderResearch Council of Finlanden
dc.relation.funderSuomen Akatemiafi
jyx.fundingprogramCentre of Excellence, AoFen
jyx.fundingprogramHuippuyksikkörahoitus, SAfi
jyx.fundinginformationThis study was supported by the Ministry of Science and Technology, Taiwan (MOST107-2314B-182–007-MY3); Chang Gung Medical Foundation (CMRPD1H0221; CMRPD1H0222); Healthy Aging Research Center, Chang Gung University from the Featured Areas Research Center Program within the Framework of the Higher Education Sprout Project by the Ministry of Education (MOE) in Taiwan (EMRPD1I0421, EMRPD1I0501); and National Health Research Institute, Taiwan (NHRI-EX109-10906PI).
dc.type.okmA1


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